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Cronicitat i cures pal·liatives pediàtriques

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Publicacions

  • Pons-Tomàs G, Painamil RM, Ricart S, Pellicer E, Sanflorencio LP, Ponce L and Torrús I.

    Characteristics of tracheostomized patients followed up by a Palliative Care and Complex Chronic Patient Service.

    anales de pediatria . 100(4): 251-258.

    [doi:10.1016/j.anpede.2024.03.010]

  • Pérez-Torres Lobato M, Navarro L, de Noriega I, Morey Olivé M, Solano-Páez P, Rubio Pérez E, Garrido Colino C, García Abos M, Tallón García M, Huidobro Labarga B, Portugal Rodríguez R, López Ibor B, Lassaletta Á, Morgenstern Isaak A, Cruz-Martínez O, Valero Arrese L, Llort Sales A, Gros Subias L, Márquez Vega C, Moreno L and Quiroga-Cantero E.

    Palliative care for children with central nervous system tumors: results of a Spanish multicenter study

    CLINICAL & TRANSLATIONAL ONCOLOGY . 26(3): 786-795.

    [doi:10.1007/s12094-023-03301-7]

  • Miquel-Diego P, Clemente I and Ciccorossi M.

    Exploring spirituality, religion and life philosophy among parents of children receiving palliative care: a qualitative study.

    BMC PALLIATIVE CARE . 23(1): 43-43.

    [doi:10.1186/s12904-024-01345-2]

  • Pons-Tomás G, Morales RA, Ricart S, Pellicer E, Peñarrubia L, Ponce L and Torrús I.

    Características de los pacientes traqueostomizados en seguimiento por un Servicio de Atención Paliativa y de Paciente Crónico Complejo (SAPPCC)

    ANALES DE PEDIATRIA . : .

    [doi:10.1016/j.anpedi.2023.12.006]

  • Toro D, Limonero JT, Guillen M, Bolancé C, Navarro S and Camprodon-Rosanas E.

    Evaluating quality of life in pediatric palliative care: a cross-sectional analysis of children's and parents' perspectives

    EUROPEAN JOURNAL OF PEDIATRICS . : 1305-1314. Nº de cites: 1

    [doi:10.1007/s00431-023-05330-4]

  • Popenhagen, Mark P., Genovese, Paola, Blishen, Mo, Rajapakse, Dilini, Diem, Anja, King, Alex, Chan, Jennifer, Pellicer E, Baird, Simone, Ferreira da Rocha, Anna Carolina, Stitt, Gideon, Badger, Kellie, Zmazek, Vlasta, Ambreen, Faiza, Mackenzie, Caroline, Price, Harper, Roberts, Toni, Moore, Zena, Patton, Declan, Murphy, Paul and Mayre-Chilton, Kattya.

    Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosa

    ORPHANET JOURNAL OF RARE DISEASES . 18(1): .

    [doi:10.1186/s13023-023-02870-8]

  • Claudia Solito, Plaza-Luna L, Navarro L and Navarro S.

    Implicaciones clínicas de la retirada de alimentación e hidratación artificial en pacientes pediátricos en el final de vida

    Medicina Paliativa . 30(1): 11-17.

    [doi:10.20986/medpal.2022.1334/2022]

  • Toro D, Camprodon-Rosanas E, Navarro S, Clemente I and Limonero JT.

    Desarrollo de la entrevista ESNA: un instrumento para evaluar el sufrimiento en niños y adolescentes con enfermedades graves y necesidades paliativas

    Psicooncologia . 20(1): .

    [doi:10.5209/psic.85118]

  • Amato, ME, Ricart S, Vicente-Villa MA, Martorell-Sampol L, Armstrong-Moron J, Fernandez-Isern G, Mascaro, JM, Balsells S, Alonso, I, Serrano M and Ortigoza-Escobar JD.

    Coexistence of junctional epidermolysis bullosa, autosomal recessive deafness type 57, and Angelman syndrome: A case report

    clinical case reports . 11(4): . Nº de cites: 1

    [doi:10.1002/ccr3.7275]

  • Toro D, Camprodon-Rosanas E, Navarro S, Bolance, C, Guillen, M and Limonero, JT.

    Assessing well-being in pediatric palliative care: A pilot study about views of children, parents and health professionals

    PALLIATIVE & SUPPORTIVE CARE . : 1-9. Nº de cites: 1

    [doi:10.1017/S1478951523000251]