Begoña Nafria Escalera
Jefe de Grupo
Research group
Begonya Nafria has long experience in the field of patient and family participation in research initiatives. Her personal history as a caregiver for an adult with cerebral palsy has linked her to various projects and initiatives in the field of defending patients' rights.
Her areas of expertise focus on the participation of paediatric patients in research and specifically in the field of clinical trials.
Relevant aspects of hes curriculum are: CIBERER collaborator, EUPATI member, eYPAGnet Coordinator, Kids Barcelona Coordinator (YPAG of Hospital Sant Joan de Déu), member of the EFGCP Children's Medicines working group and member of the working group of patients and families of EnprEMA (European Network for Pediatric Research of EMA).
She is also a reviewer for various journals specialized in the subject of patient participation in research and rare diseases, and a teacher in seminars, courses and conferences.
Last Publications
- Alessandrini E, Brako F, Scarpa M, Lupo M, Bonifazi D, Pignataro V, Cavallo M, Cullufe O, Enache C, Nafria-Escalera B, Claverol J, De Taeye L, Vermeulen E, Preston J and Tuleu C Children's Preferences for Oral Dosage Forms and Their Involvement in Formulation Research via EPTRI (European Paediatric Translational Research Infrastructure). Pharmaceutics . 13(5): 730.
- Faulkner SD, Sayuri Ii S, Pakarinen C, Somers F, Jose Vicente Edo M, Prieto Remon L, Diaz Ponce A, Gove D, Ferrer E, Nafria-Escalera B, Bertelsen N, Boudes M, Brooke N, Moutet A and Fahy N Understanding multi-stakeholder needs, preferences and expectations to define effective practices and processes of patient engagement in medicine development: A mixed-methods study. HEALTH EXPECTATIONS . 24(2): 601-616.
- Radu R, Hernández-Ortega S, Borrega O, Palmeri A, Athanasiou D, Brooke N, Chapí I, Le Corvec A, Guglieri M, Perera A, Jon Garrido Aguirre, Ryll B and Nafria-Escalera B Global Collaborative Social Network (Share4Rare) to Promote Citizen Science in Rare Disease Research: Platform Development Study. jmir formative research . 5(3): e22695.
Projects
- Project name:
- YEAH_Youngsters EngAgement in Health science_2021
- Leader
- Begoña Nafria Escalera
- Funding entities:
- EIT Health e.V
- Code
- 210661
- Starting - finishing date:
- 2021 - 2021
- Project name:
- YEAH: Youngsters EngAgement in Health science
- Leader
- Begoña Nafria Escalera
- Funding entities:
- EIT Health e.V
- Code
- 20624
- Starting - finishing date:
- 2020 - 2020
- Project name:
- Patients Advocacy Area.
- Leader
- Begoña Nafria Escalera
- Funding entities:
- Clientes Diversos
- Code
- PFNR0099
- Starting - finishing date:
- 2018 - 3000