Begoña Nafria Escalera

Begoña Nafria Escalera

Begonya Nafria has long experience in the field of patient and family participation in research initiatives. Her personal history as a caregiver for an adult with cerebral palsy has linked her to various projects and initiatives in the field of defending patients' rights.

Her areas of expertise focus on the participation of paediatric patients in research and specifically in the field of clinical trials.

Relevant aspects of hes curriculum are: CIBERER collaborator, EUPATI member, eYPAGnet Coordinator, Kids Barcelona Coordinator (YPAG of Hospital Sant Joan de Déu), member of the EFGCP Children's Medicines working group and member of the working group of patients and families of EnprEMA (European Network for Pediatric Research of EMA).

She is also a reviewer for various journals specialized in the subject of patient participation in research and rare diseases, and a teacher in seminars, courses and conferences.

begonya.nafria@sjd.es

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Projects

Project name:
Science4Pandemics: Cizitens engagement digital platform for collective intelligence in pandemics
Leader
Begoña Nafria Escalera
Funding entities:
Fundació Privada per a la Recerca i la Docència Sant Joan de Déu - FSJD, EIT Health e.V
Code
220365
Starting - finishing date:
2022 - 2024
Project name:
Ágora de la Ciencia
Leader
Begoña Nafria Escalera
Funding entities:
Fundación Española para la Ciencia y la Tecnología
Code
FCT-20-16045
Starting - finishing date:
2021 - 2022
Project name:
YEAH: Youngsters EngAgement in Health science
Leader
Begoña Nafria Escalera
Funding entities:
EIT Health e.V
Code
20624
Starting - finishing date:
2020 - 2020
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