Begoña Nafria Escalera

Begoña Nafria Escalera

Jefe de Grupo

Begonya Nafria has long experience in the field of patient and family participation in research initiatives. Her personal history as a caregiver for an adult with cerebral palsy has linked her to various projects and initiatives in the field of defending patients' rights.

Her areas of expertise focus on the participation of paediatric patients in research and specifically in the field of clinical trials.

Relevant aspects of hes curriculum are: CIBERER collaborator, EUPATI member, eYPAGnet Coordinator, Kids Barcelona Coordinator (YPAG of Hospital Sant Joan de Déu), member of the EFGCP Children's Medicines working group and member of the working group of patients and families of EnprEMA (European Network for Pediatric Research of EMA).

She is also a reviewer for various journals specialized in the subject of patient participation in research and rare diseases, and a teacher in seminars, courses and conferences.

begonya.nafria@sjd.es

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Last Publications

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Projects

Project name:
Evaluación de un nuevo test diagnóstico rápido para la cuantificación de biomarcadores pronósticos en el triaje del paciente crítico y la mejora de la superviviencia neonatal e infantil (ACROBAT-Critical)
Leader
Ana Alarcon Allen
Funding entities:
Instituto de Salud Carlos III (ISCIII)
Code
PI23/00103
Starting - finishing date:
2024 - 2026
Project name:
PALLIAKID_COMPREHANSIVE PAEDIATRIC PALLIATIVE CARE APPROACH
Leader
Sergi Navarro Vilarrubi
Funding entities:
European Commission
Code
101137169
Starting - finishing date:
2023 - 2028
Project name:
PHEMS: Pediatric Hospitals as European drivers for multi-party computation and synthetic data generation capabilities across clinical specialties and data types
Leader
Arnau Valls Esteve
Funding entities:
European Commission
Code
101094195
Starting - finishing date:
2023 - 2026
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News

  • Nanomedicine to tackle rare diseases

    Experts in nanomedicine from various fields have gathered today for the fifth consecutive year at Nano Rare Diseases Day. This event is co-organized by IRSJD and the NANOMED Spain platform, coordinated by IBEC.

  • The Pediatric Innovation Day 2023 is celebrated in Warsaw

    The third edition of Pediatric Innovation Day (PID) marked a milestone by being held outside Barcelona for the first time, moving to Warsaw. This event solidified itself as a space for collaboration and shared knowledge, emphasizing the importance of international cooperation, active patient participation, and a precise understanding of specific needs in the pediatric healthcare field.

  • The IRSJD joins the XarSMART network to promote the transfer of medical technology in Catalonia.

    The Institut de Recerca Sant Joan de Déu (IRSJD) participates in XarSMART, a project that aims to promote the generation of medical technologies and new companies in Catalonia in the field of life sciences and health.

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