Begoña Nafria Escalera
Jefe de Grupo
Research group
Begonya Nafria has long experience in the field of patient and family participation in research initiatives. Her personal history as a caregiver for an adult with cerebral palsy has linked her to various projects and initiatives in the field of defending patients' rights.
Her areas of expertise focus on the participation of paediatric patients in research and specifically in the field of clinical trials.
Relevant aspects of hes curriculum are: CIBERER collaborator, EUPATI member, eYPAGnet Coordinator, Kids Barcelona Coordinator (YPAG of Hospital Sant Joan de Déu), member of the EFGCP Children's Medicines working group and member of the working group of patients and families of EnprEMA (European Network for Pediatric Research of EMA).
She is also a reviewer for various journals specialized in the subject of patient participation in research and rare diseases, and a teacher in seminars, courses and conferences.
Last Publications
- Nafria-Escalera B, Gaillard S, Dehlinger-Kremer M, Dicks P, Fernandes R, Bray L, Bierer BE and Phillips B Parents' Perspectives on Access to Pediatric Rare Disease Cross-Border Clinical Trials in Europe: Experiences of Language Inclusion and Preferences Therapeutic Innovation & Regulatory Science . : .
- Baba A, Smith M, Potter BK, Chan AW, Moher D, Toulany A, Doherty-Kirby A, Nafria-Escalera B, Stratton C, Gale C, Macarthur C, Purper-Ouakil D, Juszczak E, Cohen E, Reggiardo G, Preston J, Cohen JF, Upton J, Allegaert K, Boerner K, Mehta K, Nguyen KA, Courtney K, Hartling L, Konstantinidis M, Odermarsky M, Butcher NJ, Kolehmainen N, Longmuir PE, Gill PJ, Leroy P, Feneberg R, Poluru R, Morris SK, Friedrichsdorf SJ, Chute Nagy T, Klassen TP, Lacaze-Masmonteil T, Onland W and Offringa M CONSORT-C 2026 explanation and elaboration: recommendations for enhancing the reporting and impact of paediatric randomised trials. BRITISH MEDICAL JOURNAL . 392: .
- Nafria-Escalera B, Claverol J, Cubells M, Llanos C, Solé L, Sans E, López S, Català-Mora J, Rives-Solà S, Morales-La Madrid A, Pineda M, Garcia-Cazorla A, Nascimento-Osorio A, Morales-Ballús M, Roe D, Fortuny-Guasch C and Phillips B Cross-border access to clinical trials: participation of pediatric patients and language inclusion PEDIATRIC RESEARCH . : .
Projects
- Project name:
- READI_Research in Europe and Diversity Inclusion
- Leader
- Begoña Nafria Escalera
- Funding entities:
- European Commission
- Code
- 101166227
- Starting - finishing date:
- 2025 - 2030
- Project name:
- YARN: European Youth Cancer Network
- Leader
- Begoña Nafria Escalera, Esther Lasheras Soria
- Funding entities:
- European Commission
- Code
- 101219053
- Starting - finishing date:
- 2025 - 2028
- Project name:
- Fortaleciendo el conocimiento infantil sobre los MMR y la prevención de su propagación
- Leader
- Begoña Nafria Escalera
- Funding entities:
- Pfizer, S.L.U.
- Code
- PCP00488
- Starting - finishing date:
- 2025 - 2026
News
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Sant Joan de Déu launches a new interactive games space to bring research closer to patients and families
The initiative, called "Play and learn about research", is located in the main lobby of the Hospital and combines puzzles, educational videos and scientific discoveries.
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Bringing Science Closer to Schools: A decade of training young people in clinical research and inspiring scientific vocations
Institut de Recerca Sant Joan de Déu and Farmaindustria launched this project ten years ago, and it has already reached more than 3,000 high school and vocational training students in Barcelona alone.
More activities
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Share4Rare | Investigación colaborativa en salud mental en enfermedades raras
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